SPEAKERS

Ros Quinlivan, Professor of Neuromuscular Diseases (NMD) at the Queen Square Centre for Neuromuscular Disease in London, originally trained in Paediatrics but after completing her research degree on the cardiomyopathy of Duchenne and Becker muscular dystrophy, developed an interest in both adult and paediatric NMD. She developed the Neuromuscular Complex Care Centre (NMCCC) which co-ordinates all aspects of neuromuscular care in one in-patient episode. She leads for transition and manages a large cohort of young adults with childhood onset NMD including DMD and she runs a national diagnostic and management service for McArdle disease and related disorders.

She leads the Adult North Star Network which developed UK standards of care for adults with DMD. She has been PI for clinical trials in DMD, SMA, myotubular myopathy, Becker MD and McArdle disease. Previously, she was co-ordinating editor for Cochrane Neuromuscular and chair of the British Myology Society. She is currently research director for the European Neuromuscular Centre (ENMC).